Where to find information about medications
Information about medications containing phenylalanine can be found in the PKU Handbook, chapter 14 page 125. The PKU Handbook can be found here.
Other places to find information about medications are also:
- Your Health Professional – GP/doctor/dentist/nurse/midwife – discuss with them that you will be avoiding medications containing phenylalanine for your health.
- Your Pharmacist – to guarantee you are getting reliable information about your medicines and what the ingredients are is to talk to your pharmacist and ask for a “Consumer Medicine Information (CMI) leaflet”.
- Read the CMI (written user friendly) before you begin taking your medication to learn about how to safely take your medication and about possible side effects and interactions with other substances. While CMIs are a valuable source, reading one does not take the place of discussion with your health professionals. You can search and download CMIs for prescription medication from the Australian Therapeutic Goods Administration.
- Medicines Line (Australia) – can provide information on prescription, over-the-counter and complementary medicines. TEL 1300 MEDICINE (1300 633 424)
- Always seek your own medical advice for your individual health care needs. For any concerns – call your Metabolic Clinic Team (as per our MDDA Social Media Policy)
- There is also a poisons hotline, open 24 hours a day. Call 13 11 26 from anywhere in Australia to seek advice on what to do if you’ve taken the wrong medication or you think you’ve ingested something poisonous. (In an emergency always dial 000)
– Patient Pathways Care Co-Ordinator