Transitional Handbook

‘Getting Ready for Transition’ – A guide for parents/guardians and young people

At the 2019 National Family Retreat, the MDDA ran a session called ‘Inborn Errors of Metabolism Transitional Workshop for Young People and Parents’. These sessions were delivered to describe the key components of transitional care for the young people and their parents/guardians. Transition refers to a young persons move to the adult hospital system. Even though the formal process happens around 18 years of age, the transition process starts earlier, around 13 years of age. A pilot resource as a handbook was created for both groups.

The MDDA Transition booklets for our young people and parents/guardians offers practical guidance to help both groups understand and prepare for the transition process.

To Download the Handbook ‘Getting Ready for Transition’ Click Below