MDDA will continue to provide updates regarding PKU & IEM related information surrounding COVID-19. However, always consult your metabolic clinic should you have serious health concerns.
Grocery Shopping Update
Coles and Woolworths have introduced a dedicated Community Hour for at-risk customers. Beginning at Coles on 26 March and at Woolworths on 30 March, the stores are open only to the elderly and vulnerable members of the community from 7am to 8am on Mondays, Wednesdays and Fridays, and to emergency services and healthcare workers on Tuesdays and Thursdays.
For more information click here.
For the majority of people with PKU/IEMs one prescription is equal to at least one month supply. There may be some exceptions where people may need more for medical reasons. If your circumstances differ you will need to contact your dietitian to discuss your individual circumstances due to the new dispensing restrictions.
As part of the Government’s response to Coronavirus (COVID-19) they are paying $750 one off Economic Support Payment for those living in Australia.
You don’t need to do anything, as they will pay you automatically. You’ll get the money from 31st March with most getting it by 17th April 2020.
To read more click here.
For some rarer IEMs risk of decomposition due to viral infection is high and therefore a sick day action plan is common place.
To read about precautions to take for individuals with a ‘sick day action plan’ in regards to COVID-19 click here.
If you or other members of your immediate household are asked to self-isolate or present for Coronavirus testing, then: let your metabolic team know (this will help with planning) and do not attend any routine outpatient appointments at the hospital but instead contact your metabolic team to discuss if another form of appointment is needed eg. by telephone or video.
According to HealthDirect:
If you have severe difficulty breathing, call triple zero (000) immediately and tell the call handler and the paramedics on arrival about your recent travel history and any close contact with an infected person.
You can also use the Symptom Checker to find out if you need to seek medical help.
If the Symptom Checker tells you to seek medical help, it is very important that you call before visiting your doctor or the hospital emergency department, to describe your symptoms and travel history.
We recommend that, if you are advised to head to hospital with possible COVID-19 symptoms that you immediately call your metabolic clinic using the on call number, making them aware that you are coming on medical advice with suspected symptoms of COVID19. Once you arrive at the Emergency department, let them know about your IEM and that you have called the metabolic clinic. Have the “on call number” with you to give to emergency staff.
You can also call the Australian Government’s National Coronavirus Helpline on 1800 020 080.