News

2020 MDDA Family Retreat Postponement Details

ANNOUNCEMENT: MDDA Family October Retreat QLD – Postponed to April 2021 After months of deliberation we have decided to postpone the 2020 National MDDA Family Retreat that was set to take place this year at the beautiful Sanctuary Cove in October. As much as we would love to proceed with the event as planned, our

Daily Shoppers ‘Community Hour’ for Healthcare Cardholders – Update

Grocery Shopping – Update Coles and Woolworths have introduced a dedicated Community Hour for at-risk customers. Beginning at Coles on 26 March and at Woolworths on 30 March, the stores are open only to the elderly and vulnerable members of the community from 7am to 8am on Mondays, Wednesdays and Fridays, and to emergency services and healthcare workers

Supply – formulas, supplements, low protein products and medicines update

MDDA understand that recently there has been some serious concerns with getting supply of supplements during these uncertain times. We have spoken to all of the suppliers again today, they have advised that there are no shortages of supplements/products/medicines. There is enough product available for everyone who needs them if we all continue to order

A $750 one off Economic Support Payment for those with Carer Allowance

As part of the Government’s response to Coronavirus (COVID-19) they are paying $750 one off Economic Support Payment for those living in Australia. You don’t need to do anything, as they will pay you automatically. You’ll get the money from 31st March with most getting it by 17th April 2020. Eligible payments include: Age Pension Disability

MDDA Coronavirus (COVID-19) Advice Resource

The health and wellbeing of the IEM community is our absolute priority and we are continuing to monitor the most up to date information on Coronavirus (COVID-19). We have had many questions regarding how this virus may affect those living with an Inborn Error of Metabolism, particularly with issues in obtaining food and medical supplies.

MDDA Update – LP Product Supply and Coronavirus

MDDA have contacted each of the suppliers of medicines, supplement/formula prescription products and low protein food suppliers. The companies have advised that there are no current stock supply issues or perceived shortages. The companies will restrict orders to usual quantities to ensure the supply remains as normal. We understand the concern regarding the risk of

Bushfire assistance for IEM Families in need.

MDDA sympathises with all of those affected by the catastrophic bushfires that are occurring across the country this summer. We encourage any IEM families seeking assistance to contact the MDDA directly at (03) 9723 0600 or [email protected] and we can connect you with the appropriate resources. We also encourage you to reach out via our

New Director of Queensland Metabolic Lifespan Service

“After an esteemed career, Dr Jim McGill will retire from clinical Metabolic Medicine on the 31st December this year. I am pleased to announce that following a competitive process, Anita Inwood has been appointed as the new Director of Metabolic Medicine. Anita has worked in Metabolic Medicine since 2003, and was awarded a Churchill Fellowship

Advocacy in Canberra

MDDA representatives Louise Healy and Jenny Briant were in Canberra this week continuing to advocate for universal access to best treatments and health outcomes for people living with IEMs. Thank-you to Senator Catryna Bilyk, and also Members Trent Zimmerman, Trevor Evans and John Alexander, for taking the time to speak with us today. Click here

International PKU Day

Celebrating International PKU Day! Today on Friday June 28th, we celebrate International PKU Day! Why the 28th? It’s because a combination of three things: 1. Robert Guthrie, the inventor of the newborn screening test, was born June 28th, 1916, 2. Horst Bickel, the first to develop a low protein diet, was born June 28th, 1918,

2019 National Family Retreat Registrations are now Open!

Exciting news!! Registrations for the 2019 National Family Retreat are NOW OPEN! The Retreat will take place in beautiful Tasmania from Friday 4th to Sunday 6th October. Come meet other members of the MDDA community, and their families, in a fun and social environment creating a weekend that you won’t ever forget. For more

PKU Mums & Bubs Morning Tea @ Royal Melbourne Hospital

MDDA wishes to congratulate the Royal Melbourne Hospital on a great initiative of getting PKU Mums and bubs together to share their experiences. You can read more about the Morning Tea here. This is going to be an annual event with next year set to include Grandparents too. This was a great event for the