Care and Education
This initiative is part of the Patient Pathways Pilot program developed by the Centre for Community-Driven Research. The program has placed a specialist tele-health nurse, Joanne Campbell, in our organisation to provide a pathway for support for patients to access a coordinated comprehensive case management service, to talk about their experience so that this information can inform future research, treatment, care, information and support across the health sector.
The program gives the opportunity to not only support patients and their families, but also implement a system to encourage community engagement and feedback in health and research.
It is important to also note that the nurse will not provide treatment advice. The main objective of this role is to develop tailored care plans, provide practical and emotional support, education and connection with existing services.
Need to Talk?
Feel free to call our Patient Pathways Care Coordinator anytime Monday, Tuesday or Wednesday at 03 9723 0700
Where to find information about medications
Unsure about who to contact about information on medications?
School Starters and Back-to-School Resource
Need some lunch box ideas? Unsure how to talk to the school about your little ones IEM? Want to read about current students school experience? Read all about this and more in our School Starters Resource.
Information on Artificial Sweeteners
Unsure about which artificial sweeteners contain Phe?
Coronavirus (COVID-19) Advice Resource
With the recent outbreak of COVID-19, we have had many questions regarding how this virus may affect those living with an Inborn Error of Metabolism, particularly with issues in obtaining food and medical supplies. MDDA has created a resource that we will continue to update addressing some of these concerns.