• Skip to header navigation
  • Skip to members navigation
  • Skip to footer navigation
  • Skip to content
  • Members
  • Login
  • MDDA on social media: Twitter Facebook YouTube RSS Feed
Metabolic Dietary Disorders Association (MDDA) Metabolic Dietary Disorders Association (MDDA) - Ensuring all IEM's have informed choices and a better quality of life.
Metabolic Dietary Disorders Association (MDDA)

Ensuring all IEM's have informed choices and a better quality of life.

  • Home
  • Food
    • Food Statistics
    • Recipes
    • Submit Recipe
    • Special Medical Foods
  • Diagnosis
    • 3-Methylcrotonyl CoA Carboxylase Deficiency (3MCC)
    • Arginase Deficiency (ARG)
    • Argininosuccinic Acidemia (ASA)
    • Citrullinaemia
    • Glutaric Acidaemia Type 1 (GA1)
    • Homocystinuria (HCU)
    • Isovaleric Aciduria (IVA)
    • Maple Syrup Urine Disease (MSUD)
    • Methylmalonic Aciduria (MMA)
    • Ornithine Transcarbamylase Deficiency (OTC)
    • Phenylketonuria (PKU)
    • Propionic Acidaemia (PA)
    • Tyrosinaemia Type 1 & 2 (TYRO)
  • Resources
    • Trials and Research
    • Treatment Advancements
    • Metabolic Clinics
    • IEM Food Grant
    • School Starters
    • Government Carer Allowances
    • Handbooks / Guidelines
    • Care and Education
    • Literature and Presentations
    • Transitional Handbook
    • External Links
  • How to Help
    • Donate
    • Corporate Partnership
    • Become a Member
    • Fundraise
    • Join #teamMDDA
    • Volunteer
    • MDDA Program and Research Initiatives
    • LowPro Inspo
    • Pathways
    • My LowPro Pal App
    • Zest
    • LowPro Eats
  • News & Events
    • News
    • Events
  • About MDDA
    • About MDDA
    • Our People
    • Our Partners
    • Strategic Priorities
    • Annual Reports
    • Website Terms of Use, Privacy & Social Media Policies
  • Members
    • Join/Renew
    • Terms & Conditions
    • Login To Renew
  • Contact
  • Show Search
Hide Search

Care and Education 

This year the MDDA became proud recipients of the Patient Pathways program announced by Health Minister Greg Hunt MP.

This initiative is part of the Patient Pathways Pilot program developed by the Centre for Community-Driven Research. The program has placed a specialist tele-health nurse, Joanne Campbell, in our organisation to provide a pathway for support for patients to access a coordinated comprehensive case management service, to talk about their experience so that this information can inform future research, treatment, care, information and support across the health sector.

The program gives the opportunity to not only support patients and their families, but also implement a system to encourage community engagement and feedback in health and research.

It is important to also note that the nurse will not provide treatment advice. The main objective of this role is to develop tailored care plans, provide practical and emotional support, education and connection with existing services.

This webpage will act as a resource for Care & Education. It will help with patient empowerment through education and information provision.

Need to Talk? 

Feel free to call our Patient Pathways Care Coordinator anytime Monday, Tuesday or Wednesday at 03 9723 0700

Where to find information about medications

Unsure about who to contact about information on medications?

Click here to find out

Tips for taking blood samples

Want some tips for taking blood samples?

Click here to find out

School Starters and Back-to-School Resource

Need some lunch box ideas? Unsure how to talk to the school about your little ones IEM? Want to read about current students school experience? Read all about this and more in our School Starters Resource.

Read more

Information on Artificial Sweeteners

Unsure about which artificial sweeteners contain Phe?

Click here to find out
FacebookTweetPin
  • Privacy Policy
  • Website Terms of Use

Copyright © 2017–2020 Metabolic Dietary Disorders Association · Website by Spinning Webs Media