Ensuring all IEM's have informed choices and a better quality of life.

Strategic Priorities

The long term purpose and objectives of the association are to provide a credible, supportive service to all people affected by, and living with a dietary managed (Amino Acid) Inborn Error of Metabolism in Australia.

Policy

  • Educate and advise government on Health policies and decisions effecting people with IEMs
  • Consult with health professionals to influence improved care and clinical resources for IEMs
  • Promote cooperation and consistency of care between state based IEM clinics, and facilitate a national framework of care.
  • Provide well-informed support and advice relevant to the needs of people with an inborn error of metabolism and to the needs of interested parties.
  • Assist consumers to improve their understanding of government policy and the availability of Inborn Errors of Metabolism grants and support resources and services.
  • Promote national consistency in the treatment, care and management guidelines for IEMs
  • Represent the needs of people with an IEM dietary condition and their families with governments and other organisations.
  • Promote and encourage individuals to self-advocate in matters related to the condition.

Consultation, Representation and Networking

  • Consult with and represent members on all matters relating to IEM health care policy and programs, and advise Government and key stakeholders accordingly.
  • Represent the national IEM community through participation in health policy discussion papers and national advisory and consultation forums.
  • Maintain strong links with health care professionals, IEM clinicians and research communities.
  • Build relationships and share information with other health and support organisations with similar or complementary objectives.
  • Encourage community service and health/wellbeing groups to be interested in the incidence of metabolic dietary disorders in the community.
  • Collaborate with International alliances for achievement of greater global IEM care.
  • Liaise with medical food suppliers within Australia to ensure variety and continuity of specialised IEM food options.

Governance

  • Maintain our position as an effective national body representing the consumers and the carers of people with an inborn error of metabolism.
  • Operate as a well-managed and accountable community based organisation.
  • Continue to involve the IEM community in all aspects of planning and coordination of IEM support programmes, and encourage personal participation and contribution.
  • Continue to maintain a diverse and active executive committee and office personnel team, seeking continuous training and development opportunities.