Diagnosis
Diet for Life!
Metabolic Disorders are grouped according to the type of food that cannot be broken down properly.
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Explore our collection of low protein recipes, share your cooking experiences and discover new products that are available.
Learn
Browse our reference library and learn everything there is to know about the disorders, their diagnosis and management.
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Help increase the awareness of IEMs in the community. Become a member, volunteer and raise funds.
MDDA membership renewals are now due
Renew your membership today!
MDDA members will be sent an email in the coming days which will link you to your online MDDA profile. Upon receipt, you will be able to manage and update your membership profile online to access and enjoy the many benefits of the MDDA – tailored to suit you and your family.
Healthy Meal Plans
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Stuck for ideas on what to cook?
Sign up for our weekly curated meal plans designed for optimum nutrition without creating a hole in your pocket.
For more information about the Patient Pathways Tele-health Nurse and the services provided click here
Dr Jim McGill receives 2021 Australia Day Honours
MDDA extend our most heartfelt congratulations to Dr McGill who was awarded Member (AM) in the General Division in the Australia Day honours for significant service to metabolic medicine, to biochemical genetic pathology, and to medical education. Without hesitation MDDA were proud to provide a reference for Dr McGill’s nomination. Dr. McGill is a worthy
Kuvan recommended by PBAC for treatment for maternal women living with PKU in Australia
The Metabolic Dietary Disorders Association is extremely pleased with the decision of the Pharmaceutical Benefits Advisory Committee (PBAC) to recommend the listing of Kuvan (sapropterin dihydrochloride) on the Pharmaceutical Benefits Scheme (PBS) for maternal women living with phenylketonuria (PKU). The PBAC noted there is a high clinical need in a small patient population, and acknowledged the input received from individuals, organisations
PBAC Kuvan Deferral for maternal women with PKU
PBAC Kuvan Deferral for maternal women with PKU The Metabolic Dietary Disorders Association recognises the decision by the Pharmaceutical Benefits Advisory Committee (PBAC) to defer the listing of Kuvan (sapropterin hydrochloride) on the Pharmaceutical Benefits Scheme (PBS) for maternal women living with phenylketonuria (PKU). We understand that the PKU community may feel disappointed by this decision, however,
MDDA Office & Supplier Christmas Trading Hours
MDDA Christmas Office Hours The MDDA Office is taking a break from the 21 December to 8 January 2021. For the remainder of January our office hours will be reduced. Supplier Christmas Trading Hours Vitaflo Vitaflo Australia will be closed from Wednesday 23rd December 2020 and reopening on Monday 4th January 2021. Last orders to
Fundraiser – Quilpie BBQ Breakfast for PKU
MDDA is thankful to the Welk Family for organising a fundraiser on behalf of MDDA on Rare Disease Day. Their daughter Tilly is a two year old with PKU. If you would like to contribute to the fundraiser click here! MDDA thanks them again for all of their support!
Rare Disease Day 2021
On 28 February 2021 MDDA join many other global organisations, individuals and families to celebrate International Rare Disease Day. The theme for Rare Disease Day 2021 is ‘Rare is MANY, Rare is STRONG, Rare is PROUD’. We celebrate this day and reflect on the strength of every Australian living with rare genetic disorders known as Inborn Errors
Hold a Fundraiser
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There are dozens of ideas that can get people involved in raising funds.
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The MDDA is supported by funding from the Australian Government under the Health Peak and Advisory Bodies Program. MDDA is registered with the Australian Taxation Office as an Public Benevolent Institution. We are endorsed as a Deductible Gift Recipient (DGR). All donations over $2 are tax deductible.
Disclaimer: Information presented within this website is intended for general purposes only and should not be construed as advising on diagnosis or treatment of any medical condition, if you have interest in any of the foods or treatments contained within this website check first with a qualified health professional.
